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Next Gen Econ > Debt > What Federal Data Says About the Financial Cost of Family Caregiving
Debt

What Federal Data Says About the Financial Cost of Family Caregiving

NGEC By NGEC Last updated: November 8, 2026 8 Min Read
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AARP’s 2026 research found that family caregivers spend an average of $11,508 annually out of pocket. Lost wages and reduced retirement contributions can create additional financial strain. Kampus Production/Pexels

Millions of Americans are providing unpaid care to aging parents, spouses, and other relatives while trying to maintain their own financial security. The work may involve managing medications, driving someone to appointments, preparing meals, or helping with daily activities. But caregiving often carries a second burden that families don’t fully recognize until their savings begin disappearing. Lost wages, reduced working hours, transportation expenses, and medical costs can make unpaid caregiving surprisingly expensive. Federal research, combined with new national caregiving data, reveals why this growing responsibility has become a major financial issue for American households.

Millions of Americans Provide Unpaid Care

The federal Bureau of Labor Statistics collects information about how Americans spend their time through the American Time Use Survey. Its research helps document unpaid activities, including household responsibilities and care provided to others. Separately, AARP and the National Alliance for Caregiving estimated in their 2025 Caregiving in the U.S. report that approximately 63 million Americans provide care to an adult or child with significant needs. These estimates use different definitions and methodologies, so they shouldn’t be treated as interchangeable federal statistics. Together, the research illustrates how unpaid care represents a substantial part of American family life and economic activity.

Family Caregivers Spend Thousands of Dollars Annually

An AARP study published October 28, 2026 found that caregivers spend an average of $11,508 annually out of pocket. That represents approximately 31% of their household income, based on the study’s findings. Caregivers with household incomes below $40,000 face an especially severe burden, with average spending equal to 76% of household income. These figures aren’t federal expenditure estimates, but they provide important context alongside government research on caregiving and employment. They also demonstrate why unpaid caregiving can create significant financial strain even when families never hire professional caregivers.

Housing and Household Expenses Drive Much of the Cost

Caregiving expenses extend far beyond medical bills. AARP’s 2026 findings show that housing and household expenses account for approximately 42% of average out-of-pocket caregiving spending, or $4,797 annually. Medical expenses account for another 29%, averaging $3,313. These categories include costs such as groceries, household support, insurance premiums, copayments, and direct medical payments. Families who focus only on prescription costs or doctor’s appointments may underestimate how much caregiving affects their overall budgets.

Federal Research Shows Caregiving Can Disrupt Employment

The U.S. Department of Labor has examined how caregiving responsibilities interact with employment and economic security, particularly for women. Providing care can require workers to reduce their hours, decline promotions, change jobs, or leave the labor force entirely. AARP’s 2026 research found that 65% of working caregivers experienced at least one employment-related disruption associated with caregiving. Those disruptions can reduce current wages while also affecting retirement contributions, employer benefits, and future earnings potential. The long-term financial cost may therefore extend well beyond the money caregivers spend directly on their relatives.

A Five-Year Career Disruption Can Be Expensive

Consider a worker earning $60,000 annually who reduces their schedule by 20% to care for an aging parent. That decision reduces annual wages by approximately $12,000 before taxes and other adjustments. Over five years, the direct earnings reduction totals $60,000, assuming pay and hours remain constant. If the worker also contributes less to a retirement account and receives smaller employer matching contributions, the long-term financial effect becomes larger. This hypothetical example doesn’t represent a national average, but it illustrates how caregiving can quietly undermine financial stability.

Women Often Carry a Disproportionate Burden

Family caregiving responsibilities frequently intersect with existing differences in employment, earnings, and retirement savings. Women may spend years providing care for children, aging parents, or spouses while also maintaining paid employment. The federal Women’s Bureau studies labor-force participation, caregiving responsibilities, and barriers affecting women’s economic security. Career interruptions can reduce lifetime earnings and opportunities to accumulate retirement assets. However, caregiving challenges affect men as well, and families benefit when responsibilities are distributed according to available time, resources, and individual circumstances rather than assumptions about gender.

Medicare Doesn’t Pay for Every Type of Care

Many families discover that Medicare’s long-term care coverage is more limited than they expected. Medicare generally doesn’t pay for ongoing custodial care when that’s the only service someone needs, even if the person requires substantial help with daily activities. The official Medicare long-term care information explains these limitations. Medicaid may cover qualifying long-term services and supports for eligible individuals, but requirements vary by state. Understanding the difference before a family member needs extensive assistance can prevent expensive surprises and rushed financial decisions.

Federal and State Programs May Reduce the Burden

Families providing care should investigate assistance before using retirement savings or taking on debt. The federal Eldercare Locator connects older adults and caregivers with local aging services, transportation programs, meal assistance, and other resources. Medicaid home- and community-based services may help qualifying individuals receive care outside nursing facilities. Eligible workers may also have protections under the Family and Medical Leave Act, although qualifying leave is generally unpaid. These programs won’t eliminate every caregiving expense, but they can help families build a more sustainable arrangement.

The Real Cost Includes Money You’ll Never Earn

The financial cost of caregiving isn’t limited to receipts for groceries, prescriptions, or transportation. Reduced employment, missed retirement contributions, and postponed career advancement can affect household finances for decades. Federal research helps illuminate the time and labor involved, while newer national surveys reveal the direct spending pressure on families. Before accepting an open-ended caregiving responsibility, calculate both immediate expenses and potential effects on future income. Recognizing the full financial cost is an important first step toward protecting caregivers and the relatives who depend on them.

Have caregiving responsibilities affected your income, retirement savings, or ability to work? What expenses surprised you most? Share your experience in the comments!

What to Read Next

A Caregiving Expert Says These 3 Things Should Be Done Before Your Parents Have a Medical Emergency

1 in 5 Family Caregivers Report Poor or Fair Health, New Research Finds

7 Warning Signs Caregiving Is Starting to Affect Your Own Health

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